The Best Menière's Blogs To Follow When You've Just Been Diagnosed
- Aug 5
- 5 min read
When I was first diagnosed, one of the first things I did (after the anger, crying and the googling symptoms at 2am) was search for a menieres blog.
I wanted to find someone, anyone, who could tell me what this was actually going to be like. Because the printout casually handed to be at the clinic told me the facts but none of the feelings.
If you're doing the same thing right now, trying to find a living with meniere's disease blog that actually sounds like a real person and not a textbook, I've pulled together the ones I trust and have read myself. I've ranked them roughly by how established and well followed they are.
Mine's on there too, right near the end, because I'm still building and I'd rather be honest about that than pretend otherwise.
Why I went looking for a menieres blog in the first place
Nobody in my life had Menière's. My GP had no idea what it was. And although my consultant was lovely he only had about ten minutes to explain a condition that doesn't even fully make sense to the researchers studying it.
So I did what most of us do, I turned to the internet at 2am, hoping someone else had written down exactly what I was feeling.
What I found was a mixed bag. Some sites were so clinical they made me feel more alone, not less. Others were written by people genuinely living it, and those were the ones that actually helped me feel like I wasn't losing my mind.
If you're newly diagnosed and frustrated that nobody seems to be able to give you a straight answer, that's completely normal. Even the NHS page on Menière's disease is upfront that the exact cause isn't fully understood, and that treatment is about managing symptoms rather than curing them.
That's not the most comforting sentence to read at 2am, but knowing it early saved me from chasing a "cure" that doesn't exist yet.
What actually makes a good living with menière's disease blog?
Before I list them, here's what I personally look for when I'm deciding whether a blog is worth my time and trust:
Written by someone who actually has Menière's, not just writing about it from the outside. It doesn't matter how much of an expert you are, if you've never experienced the absolutely terrifying vertigo attacks I'm going to find it hard to relate to.
Honest about the bad days as well as the good ones, not just a highlight reel
Backed up by proper sources when they make a medical claim, rather than guesswork
Practical, not just emotional, so you walk away with something you can actually try
Updated regularly, so you know there's a real person still behind it
If a blog ticks most of those boxes, it's earned a spot on this list.
The best Menière's blogs worth following
VeDA isn't a single blogger, it's a whole charity with a "Spotlight" series where people share their own Menière's and vestibular stories. Because so many different voices contribute, you'll find a huge range of experiences here, from newly diagnosed panic to twenty years down the line. It's one of the most established resources out there and a good first stop.
Another charity-run blog, this time with a strong focus on the research side alongside personal stories. If you want to understand the science a bit better without wading through academic journals yourself, this is a solid, well-resourced place to start.
Formerly known as the Menière's Society, this is the main UK charity for the condition, and their site is worth bookmarking for genuinely reliable, medically reviewed information. It's less "blog" and more "trusted reference library," but it's the kind of source you can lean on when you need facts rather than feelings.
Run by a vestibular specialist, this blog leans more practical and clinical, covering things like diet, medication and vestibular rehab in plain English. It's a good complement to the more personal blogs on this list, especially if you're the type who wants to understand the "why" behind the advice.
Heather's podcast and social media presence has grown into a real community hub for vestibular warriors, as she calls us. It's not a traditional written blog, but if you prefer listening to reading, especially on the days when screens make you feel worse, this is worth a follow.
Written by Julieann Wallace, who has lived with Menière's for close to three decades, this blog has real depth to it. She's also written books on the subject, so if you want a longer, more reflective read from someone who has genuinely been through the long haul, this is a good one to sit with.
And then there's me. I started The Wudy Way because I wanted the menieres blog I wish I'd found in those first terrifying weeks, one that's honest, UK-based, and doesn't sugarcoat the hard days but still looks for the practical wins. I'm newer to this than most of the names above, and I'm still growing my little corner of the internet across the blog, TikTok, YouTube and Pinterest, but I'd rather be upfront about that than pretend I've been doing this for years. If you want a blog written by someone who's currently in it with you, not looking back on it from decades away, that's what you'll get here.
Your symptoms won't look like anyone else's, and that's okay
One thing every single blog on this list agrees on, even when they disagree on everything else, is that Menière's fluctuates wildly from person to person and even day to day for the same person. Some weeks you'll feel almost normal, others you'll be flattened. Reading around different blogs helped me understand that this unpredictability isn't a sign something's going wrong, it's just how this disease behaves. That reassurance alone was worth the hours I spent scrolling.
A few practical wins to start with
If you've read this far and you're feeling overwhelmed, here are three small things that helped me early on:
Start a simple symptom diary, even just notes in your phone, so you can spot patterns over time - I designed my own which is available to download in my free community.
Bookmark two or three blogs (not twenty) so you're not drowning in conflicting advice
Give yourself permission to have a bad day without needing to explain or justify it to anyone
You don't have to read about this alone
Reading other people's stories helps, but nothing quite replaces having somewhere to actually ask your own questions and get answered by people who understand exactly what you're going through. That's why I built the free Living with Menière's community on Skool, so you've got somewhere to land when the blogs aren't quite enough.
Health Disclaimer
This article is for informational purposes only and based on personal experience. It does not replace medical advice. Always consult a qualified healthcare professional before making changes to your diet, medications, treatment plan or start any kind of exercise regime.
Hi, I'm Sally - a Nutritional Therapist and chronic illness blogger who has been living with Menière's disease, TMJ Disorder and Degenerative Disc Disease for over twenty years. I write about the real experience of managing these conditions day to day, blending personal insight with nutritional and lifestyle knowledge. I hope something here helps you feel a little less alone.
